NPR News: The dubious consent question at the heart of the Human Genome Project

The dubious consent question at the heart of the Human Genome Project
The Human Genome Project was a massive undertaking that took more than a decade and billions of dollars to complete. For it, scientists collected DNA samples from anonymous volunteers who were told the final project would be a mosaic of DNA. Instead, over two-thirds of the DNA comes from one person: RP11. No one ever told him. Science journalist Ashley Smart talks to host Emily Kwong about his recent investigation into the decision to make RP11 the major donor — and why unearthing this history matters to genetics today. Read Ashley's full article in Undark Magazine here. Questions or ideas for future episodes? Email us at shortwave@npr.org.

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