Reposting this here given UCLA took it down. After people started to believe what I'm saying. Essentially, it looks like they downplayed diagnoses - intentionally or not TBD. Mis-recorded a lot on my medical records, especially from the initial visit. I don't have the history they're saying I do and my medical records back that. Plenty more on my profile as well. I put up imaging, some lab tests, some medical records, enough to give people enough information to make their own observations. I fully understand what I'm doing in posting this in this way too. People even came on my profile after I put this up on the UCLA subreddit, trying to pick apart specifics that are not relevant to what's going on here. Trying very hard to put this on psychosomatic causes and my mental health. It was intense what happened, but I'm alright in that area. Happy to put up more to support these assertions if that's helpful too.
I was the patient in a missed sepsis diagnosis at a major university hospital on April 29th. I spent all day in the hospital trying to escalate a worsening infection that seemed to be spreading all over my body. I was experiencing fever symptoms on and off, fluid sensation, new infection sites popping up all over rapidly. The worst of the infection was on the left side of my neck, and my entire jaw was filled with pus and fluid. My face was swollen enough I tried telling them I didn't look like myself. Nobody at this hospital listened to a word I said and I was repeatedly saying that I strongly felt like I needed IV antibiotics because of the worsening symptoms. Every staff I talked to ignored me. They finally called me out of the tent, had me see a resident ER doctor who chose not to respond to my symptoms. I was dealing with a lot of family stress at the time, and he spent more time telling me that this was more of a GP/Dermatologist issue than it was an ER issue. I was shocked they weren't immediately putting me on IV antibiotics. He wasn't paying attention to what I was trying to tell him, and in the medical notes, recorded my age wrong, recorded my statements pertaining to my rapidly worsening symptoms wrong - failed to follow any standard of care for infection treatment. The picture attached is what this doctor looked at, and put an ultrasound to, only the picture was taken about 10 hours before this doctor looked at it. It had gotten much worse by that point. I told him that I'd been draining it with gauze the nurses in the waiting area gave me due to the amount of buildup in the infection. I drew his attention to my arms, chest, and stomach where active infections were coming up all over. I didn't have medical terminology to put to it, but I told him they seemed to be connected. His response - "don't touch them." This doctor recorded that I have a history of picking at my skin and causing infections to the point I regularly go to the hospital for antibiotics, I don't. I was trying to tell him I've two cellulitis infections in my lifetime, I'm 28 years old, and have a gauge on when doctors respond to infection symptoms seriously and this seemed past that point. The ultrasound imaging looked alarming due to what looked like a mass still inside. He told me it was muscle tissue, I don't think it was. It's hard to know definitively, the report was resigned about 7 hours after I pulled through in ICU the next morning. They didn't even record my age or symptoms right. This doctor had no idea what he was doing.
The next morning, I was in bad shape. I got out of bed, and fluid seemed to start coming out of my toes. I knew I needed to go back to the hospital. I start experiencing serious chest pains in the car, something was definitely going on with my heart. This part is hard for me to back medically at this point. I get to the hospital. I try to tell them my worsening symptoms. At that point fluid is building towards my chest again, leaking out of my toes. They completely ignore me. They treat me like I'm on drugs. Soaked in body fluid, they think it's sweat. Acting like I'm anxious for no reason again and I'm trying to tell them I need a doctor bad. Getting weaker. I'm sitting in the waiting area, I don't know how long. Actively relaying cardiac and sepsis symptoms on a real time basis, and they just don't believe me.
I'm finally called over to the triage, asking for a wheelchair, they won't bring one so I have to walk over. The chest pains were coming and going at that point. I try to tell the triage nurses what's happening and what my symptoms were in the car. Finally one male nurse takes notice, I talked to him after I pulled through, recognizable guy and one of the few people that admitted anything in line with the truth that treated me. He has them put an ECG on. They see the heart drop coming and say are you having chest pains. I wasn't at the time. Then it hits, my legs start shaking, heart tanks into the mid 30s instantly. They're panicking. Get on the phone, call an ICU response to the triage of this hospital. Takes a minute or two for them to get there. I'm being held down as I'm being transferred to a gurney, wheeled through the ER, doctors yelling to everyone get out of the way. I'm literally going black trying to keep my breath going at this point.
By the time they get me to ICU or “Trauma Room”, I'm so weak that I can't even move my shoulder to help get my shirt off, still fully awake. They get my shirt off and start sticking me with IV's all over. Monitoring equipment goes on, doctors start working on me seriously. Administer IV antibiotics, lactated ringer solutions, whatever else they did there. I was just trying to fight it. I basically gave up, thinking I was going to die on that ICU bed, and start coming back. They send in portable imaging and seemingly ID something concerning in my heart. Imaging records show sepsis indicated on a chest X-ray. Possible endocarditis on a bedside ultrasound per what the doctors signed off on. I'm so weak, half dead at that point, really didn't think I would make it.
They put me in a hallway for like 8 hours after that, not telling me what happened. I'm so concerned that what put me in ICU is going to happen again, telling them I'm feeling tightness in my chest, fluid concerns, hooked up to full heart monitoring, dual deep vein IV's in. They ignore all my symptoms and complaints to the point I get pissed and I basically tell them, per the nursing notes - "stop bullshitting me." They finally move me to a more private hallway after I tell them I'm freezing cold and can't take it. The door kept opening where the ambulances were bringing people in. I finally get a room on the intensive care floor after throwing another fit after my phone dies, they won't find me a charger, and still telling me they can't find me a room.
They give me the runaround for two days, telling me they don't know what caused my heart to literally go into failure. I would have died without ICU intervention, and I'd been there the night before asking over and over again for IV antibiotics. These doctors and nurses bullshit all the diagnoses. They're saying they're calling it a pre-syncope. I'm not a doctor - but that's medical terminology for nearly fainting. They don't even tell me sepsis in the hospital from what I can remember. I find out from the discharge paperwork, where sepsis is written underneath the principal diagnosis of postural dizziness with a pre syncope. So much more conduct in the hospital that was just not okay. They released me after subjecting me to a cardio stress test they ordered using some diagnosis that has nothing to do with the infection I had. The scarring all over my body alone shows how bad this infection got. Fluid in my body for weeks. The day before they released me, a vancomycin IV burst in my arm, left a bruise for weeks. The same morning, my elbows were soaked in fluid when I woke up, and they just came in and cleaned it up, not telling me a thing.
On the morning they released me, my WBC was higher than the day I got to ICU. They didn't do any updated imaging, conflicting diagnoses everywhere. And they literally try to say "HIGHLY suspected" psychosomatic caused, while treating me for sepsis and using a lot of lactated ringer solutions. Imaging indicating the infection was in my heart. Highly elevated HS troponin readings multiples outside their reference range, and they don't even tell me any of this. The last reading they took was the day before they released me. Vital signs stable was the clinical goal on Wednesday 5/1. MAP>65 on the day they released me. I can't remember a doctor on my treatment team doing my actual discharge. Just some nurse. I was asking for medical records and reports of what treatments they did as I was leaving, wouldn't tell me anything. The nurse let it slip and told me I could find them online, which I already knew. Same response from every doctor and nurse.
A lot more to this story, but this happened at one of the biggest university healthcare systems in the country. Nothing in these records is accurate and contradictions everywhere. Pictures attached. Plenty more happened too. I was so sick for awhile after I left the hospital, I really wasn't positive I would survive for a couple weeks. They tried to say this was psychosomatic, bullshitted all the diagnoses to hide the severity of what happened. This same hospital is already getting some heat from media for their policies affecting people's health.
This definitely did not feel psychosomatic at all. I'm still recovering, still feel it in my chest sometimes. I really thought my life was over at 28. I also apologize if any of the writing comes off erratic, the experience was intense, so I relive it a little when I talk/write about it, but otherwise doing pretty well at this point. If anyone wants me to explain the specific contradictions there seem to be more thoroughly, I'm happy to do that too.
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