I was mostly pretty healthy until a vague/ever-changing auto-immune diagnosis about 5 years ago. While attempting to figure that out and treat it, I changed jobs 3 times and it's been a hellish nightmare attempting to navigate new docs (primary care, rheum), new pharmacy benefits for very expensive specialty medications (Humira), medication "discount" cards/programs, etc.
I've become so overwhelmed by it that I'm starting to give up on treatment, even though it has helped a lot. I'm currently 2 months behind on medication (I was recently 4 months behind and in constant pain due to the job/insurance change) and continue to fight weekly for my last dose of Humira to be reimbursed through some rebate program. Apparently, I exhausted the "rebate card" or whatever it was I was using for almost 5 years which brought my monthly bill from $1,200 or so to $5 so I had to pay cash and was told it would be refunded through this program. I'm on the phone constantly, with all kinds of entities I can't tell apart (CVS caremark, Humira, optiva, iqvia, god fucking knows...), uploading bills and bank statements which are constantly rejected even though I ask every time for "the absolute most in-depth, itemized receipt you can possibly provide me," which is then mailed a few weeks later and apparently doesn't meet the requirements for refund.
I'm at a loss for words and would just feel great if I could find a video that succinctly shows the absurdity and utter frustration of this system. Something that can reinforce to myself and my family that I'm not crazy and this system is insane and inhumane.
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