Hi All,
We have a 4 year old son who was born extremely premature and spent 7 months in the hospital. We have been home for a little over 3 years. When he came home he needed almost around the clock care with a vent, humidifier, etc.
He currently has a tracheostomy and a g-tube. Due to the trach we have nursing for him up to 112 hrs a week. This allows us to sleep at night and have a nurse take him to school (Head Start Program). We also have a lot of medical equipment and supplies that we get on a monthly basis.
We have primary insurance through wife’s employer and Medicaid as a backup. We were just denied Medicaid while renewing this month. We don’t qualify due to making over $47k and apparently it was only due to covid programs previously that we qualified. We were initially told that due to the extensive nature of our son’s situation we automatically qualified.
Our primary does not cover a lot of expenses including nursing and almost half the supplies needed. This will easily be $100k+ out of pocket yearly.
We have been told that long term care may be an option but after calling we were told that since he is not in danger of being admitted to the hospital for 30+ days he does not qualify.
We are in Va. I need advice for any options we may have. Really appreciate any insight and resources you can point us too.
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