So, years ago I went to a doctor close by and decided to mark them as my PCP. The first thing they did was write me a referral for the neurology center in their "system" (idk what that means tbh). Well, that guy they referred me to treated me with utter disdain, blew me off, among many other unpleasant things, and I decided I never wanted to go there again. I asked to see another neurologist. There was a long, long gap, and nothing seemed to be happening.
I kept asking my PCP to order MRIs for me because my symptoms have been getting increasingly and terribly worse over these years and every single MRI shows that I desperately need a neurologist that I can go to on a regular basis. I have cysts, I have scars, things are not looking good in there and no one seems to feel urgent about this but me.
So months ago I finally got my PCP to write me a referral, and I went through a humiliating odyssey because the nurse of the doctor told me to "find my own neurologist and then call and they will write a referral" which is very strange, I've never had a nurse or doctor tell me to do that, so after struggling to find someone, I called, and they said they already wrote me a referral. Great, okay. I call that neurologist and ... she doesn't take my insurance. What? Don't they check that? So I let them know that the one they referred me to didn't take my insurance.
A long gap of time goes by ... my chronic pain is becoming unbearable, my headaches are wiping me out ... they refer me to the guy I said I never wanted to see again. I thought about it ... but I knew it wasn't going to go well. I asked to be referred to someone else. So they told me to go find someone on my own again, and I don't know how any of this stuff works so I had to call and call and call, and I found someone I'd like to see. I asked to be referred to him. That was months ago. I am going to call tomorrow to ask if they have written the referral.
This all just seems so awfully unurgent, especially since my PCP was so profuse with her apologies when I asked her why all this was happening. Now it feels like its on purpose or something. Is this normal, or can I get better treatment? Thing is, I am poor, and rely on a state health plan for coverage.
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